National Health Organizations


American Cancer Society: A nationwide, community-based voluntary health organization dedicated to eliminating cancer as a major health problem by preventing cancer, saving lives and diminishing suffering through research, education, advocacy, and service.

American Heart Association: Committed to reducing disability and death from cardiovascular diseases and stroke. Their web site is large containing thousands of pages and many links.

American Liver Foundation: The American Liver Foundation is the only national, voluntary non-profit health agency dedicated to preventing, treating and curing hepatitis and all liver diseases through research, education and support groups.

American Lung Association: ALA’s mission is to proven disease and promote lung health with a nationwide priority on asthma. The American Lung Association has been fighting lung disease for more than 90 years, providing programs of education, community service, advocacy and research.

Growth House: Guide to Grief and Bereavement provides this award-winning portal as your international gateway to resources for life-threatening illness and end of life care. Our primary mission is to improve the quality of compassionate care for people who are dying through public education and global professional collaboration.

GriefNet.org is an Internet community of persons dealing with grief, death, and major loss. We have almost 60 e-mail support groups and two web sites. Our integrated approach to on-line grief support provides help to people working through loss and grief issues of many kinds. Our companion site, KIDSAID, provides a safe environment for kids and their parents to find information and ask questions.

Epilepsy Foundation: The Epilepsy Foundation (formerly the Epilepsy Foundation of America)® is the national organization that works for people affected by seizures through research, education, advocacy and service. As an organization of volunteers, they committed to the prevention and cure of epilepsy and a positive quality of life for everyone who lives with seizure disorders. Their current strategic goals include broadening and strengthening of research, providing individuals and families with easy access to reliable information, and assuring access to appropriate medical care for those affected by seizures.

Huntington’s Disease Society of America: Available to all Texas HD Support Groups as a tool to keep their members aware of what's going on with their local support group. The support group leader or a designee can register with the site so that they can post updates to this site.

The Leukemia & Lymphoma Society: A voluntary nonprofit health organization dedicated to curing leukemia and its related cancers (lymphoma, multiple myeloma and Hodgkin’s disease) and to improve the quality of life of patients and their families.

Lupus Foundation of America: The mission of the Lupus Foundation of America is to: Improve the quality of life of people with lupus, their family and friends through detection of the disease alleviation of suffering, and eradication of lupus through research.

Mesothelioma Cancer Center : Providing the latest, up-to-date information in the hopes of spreading awareness about the dangers of asbestos cancer. A resource on all asbestos issues ranging from occupational exposure to mesothelioma treatment options.

Mesothelioma & Asbestos Awareness Center: The Mesothelioma and Asbestos Awareness Center, is a trusted Internet resource for information about mesothelioma cancer. Our website is accredited by the Health On The Net Foundation as a trustworthy and reliable source of medical information on the web, and we are also recognized by DisabilityInfo.gov as an approved source of information for veterans and members of the military community. The MAA Center aims to increase awareness of mesothelioma cancer through public outreach efforts and the distribution of informational materials.

National Cancer Institute: Coordinates a national research program on cancer cause and prevention, detection and diagnosis, and treatment. Its mission also includes the dissemination of information about cancer to patients, the public, and health professionals.

National Coalition for Cancer Survivorship: NCCS’ mission is to improve the quality of life of people with all types of cancer. NCCS offers information on employment and insurance issues, provides referrals to sources of support and advocates on behalf of cancer survivors before Congress and federal agencies.

National Kidney Foundation: Dedicated to the prevention of kidney and urinary tract diseases and alleviating suffering from these diseases. They support research projects and sponsor a wide variety of community programs in treatment, service, education, and prevention.

National Institute of Diabetes and Digestive and Kidney Diseases (NIDDK): NIDDK conducts and supports research on many of the most serious diseases affecting public health. The Institute supports much of the clinical research on the diseases of internal medicine and related subspecialty fields as well as many basic science disciplines.

National Institute of Health: The NIH mission is to uncover new knowledge that will lead to better health for everyone. NIH works toward that mission by: conducting research in its own laboratories; supporting the research of non-Federal scientists in universities, medical schools, hospitals, and research institutions throughout the country and abroad; helping in the training of research investigators; and fostering communication of biomedical information.

National Institute of Mental Health: The mission of the National Institute of Mental Health (NIMH) is to diminish the burden of mental illness through research. This public health mandate demands that we harness powerful scientific tools to achieve better understanding, treatment and, eventually prevention of mental illness.

National Lymphadema Network: The National Lymphedema Network (NLN) is an internationally recognized non-profit organization founded in 1988 by Saskia R.J. Thiadens, R.N. to provide education and guidance to Lymphedema patients, health care professionals and the general public by disseminating information on the prevention and management of primary and secondary Lymphedema. The NLN is supported by tax-deductible donations and is a driving force behind the movement in the U.S. to standardize quality treatment for Lymphedema patients nationwide. In addition, the NLN supports research into the causes and possible alternative treatments for this often incapacitating, long-neglected condition.

National Organization for Rare Disorders: NORD is the only organization of its kind--a unique federation of more than 140 not-for-profit voluntary health organizations serving people with rare disorders and disabilities. Thousands of affected individuals and their families--as well as support groups, health care and human service professionals, and advocates for people with rare disorders and disabilities--rely on NORD's assistance and leadership. NORD is a charity and continues its mission through the kindness and generosity of its our donors.

National Parkinson Foundation: NPF has a fourfold mission: (1) to find the cause and cure of Parkinson’s disease and other allied neurological disorders through research; (2) to provide diagnostic and therapeutic services; (3) to improve the quality of life of patients and caregivers, and (4) to educate people about Parkinson’s disease.

National Stroke Association: NSA is the only national nonprofit organization dedication all its resources to stroke, including prevention, research, treatment and support for stroke survivors and caregivers.

Pleural Mesothelioma Center: Part of our mission at PleuralMesothelioma.com is to provide current, reliable data on all topics relating to pleural mesothelioma cancer. We are dedicated to compiling the latest and most up-to-date information on pleural mesothelioma and offer a number of resources to those coping with the pulmonary cancer.

Sjogren’s Syndrome Foundation: The Sjogren's Syndrome Foundation, founded in 1983, provides patients practical information and coping strategies that minimize the effects of Sjogren's syndrome. In addition, the Foundation is the clearinghouse for medical information and is the recognized national advocate for Sjogren's syndrome.

Spina Bifida Association of America: The Mission of the Spina Bifida Association of America is to promote the prevention of spina bifida and to enhance the lives of all affected. The Association was founded in 1973 to address the specific needs of the spina bifida community and serves as the national representative of over 70 chapters. SBAA's efforts benefit thousands of infants, children, adults, parents and professionals each year.

The Asbestos Cancer and Mesothelioma Support Center Mesothelioma is a cancer that remains virtually unknown despite its seriousness. For 10 years The Asbestos Cancer and Mesothelioma Support Center has concentrated on the knowledge of, and the issues stemming from asbestos exposure. They provide patients, care givers, and even potential patients with every treatment option possible to help fight this terrible disease.

United Cerebral Palsy Association: For 50 years, United Cerebral Palsy (UCP) has been committed to change and progress for persons with disabilities. The national organization and its nationwide network of 150 affiliate partners strive to ensure the inclusion of persons with disabilities in every facet of society - from the web to the workplace, from the classroom to the community. As the second largest health charity in America, United Cerebral Palsy's mission is to advance the independence, productivity and full citizenship of people with cerebral palsy and other disabilities, through our commitment to the principles of independence, inclusion and self-determination.

back to resources