National Health Organizations
American
Cancer Society:
A nationwide, community-based
voluntary health organization dedicated to eliminating
cancer as a major health problem by preventing cancer,
saving lives and diminishing suffering through research,
education, advocacy, and service.
American
Heart Association: Committed to reducing disability
and death from cardiovascular diseases and stroke. Their
web site is large containing thousands of pages and
many links.
American
Liver Foundation: The American Liver Foundation
is the only national, voluntary non-profit health agency
dedicated to preventing, treating and curing hepatitis
and all liver diseases through research, education and
support groups.
American
Lung Association: ALAs mission is to proven
disease and promote lung health with a nationwide priority
on asthma. The American Lung Association has been fighting
lung disease for more than 90 years, providing programs
of education, community service, advocacy and research.
Epilepsy
Foundation: The Epilepsy Foundation (formerly
the Epilepsy Foundation of America)® is the national
organization that works for people affected by seizures
through research, education, advocacy and service. As
an organization of volunteers, they committed to the
prevention and cure of epilepsy and a positive quality
of life for everyone who lives with seizure disorders.
Their current strategic goals include broadening and
strengthening of research, providing individuals and
families with easy access to reliable information, and
assuring access to appropriate medical care for those
affected by seizures
Grief
Counseling & Recovery "Dealing with
Grief: Information, Counseling, Recovery" Life
is a precious gift that often seems incapable of being
taken away until the day the unthinkable happens: the
death of a loved one. When a person experiences a loss,
they often feel completely shocked. Whether the loss
was expected or unexpected, emotions quickly arise.
Everyone grieves in their own way and there is no right
way to do so, although there are healthy ways to cope.
GriefNet.org
is an Internet community of persons dealing with grief,
death, and major loss. We have almost 60 e-mail support
groups and two web sites. Our integrated approach to
on-line grief support provides help to people working
through loss and grief issues of many kinds. Our companion
site, KIDSAID, provides a safe environment for kids
and their parents to find information and ask questions.
Huntingtons
Disease Society of America: Available to all
Texas HD Support Groups as a tool to keep their members
aware of what's going on with their local support group.
The support group leader or a designee can register
with the site so that they can post updates to this
site.
The Leukemia
& Lymphoma Society:
A voluntary nonprofit health organization dedicated
to curing leukemia and its related cancers (lymphoma,
multiple myeloma and Hodgkins disease) and to
improve the quality of life of patients and their families.
Lupus
Foundation of America: The mission of the Lupus
Foundation of America is to: Improve the quality of
life of people with lupus, their family and friends
through detection of the disease alleviation of suffering,
and eradication of lupus through research.
Mesothelioma
Cancer Center : Providing the latest, up-to-date
information in the hopes of spreading awareness about
the dangers of asbestos cancer. A resource on all asbestos
issues ranging from occupational exposure to mesothelioma
treatment options.
Mesothelioma
& Asbestos Awareness Center: The Mesothelioma
and Asbestos Awareness Center, is a trusted Internet
resource for information about mesothelioma cancer.
Our website is accredited by the Health On The Net Foundation
as a trustworthy and reliable source of medical information
on the web, and we are also recognized by DisabilityInfo.gov
as an approved source of information for veterans and
members of the military community. The MAA Center aims
to increase awareness of mesothelioma cancer through
public outreach efforts and the distribution of informational
materials.
Mesothelioma
Symptoms An extensive database of information and
resources for patients and their families to better
understand the symptoms of mesothelioma and the various
aspects of diagnosis, prognosis, treatment, and many
other factors of survival. Information regarding mesothelioma
will continue to become more prevalent over the next
10 years, as scientists are working effortlessly to
better understand this terrible disease.
National
Cancer Institute: Coordinates a national research
program on cancer cause and prevention, detection and
diagnosis, and treatment. Its mission also includes
the dissemination of information about cancer to patients,
the public, and health professionals.
National
Coalition for Cancer Survivorship: NCCS
mission is to improve the quality of life of people
with all types of cancer. NCCS offers information on
employment and insurance issues, provides referrals
to sources of support and advocates on behalf of cancer
survivors before Congress and federal agencies.
National
Kidney Foundation: Dedicated to the prevention
of kidney and urinary tract diseases and alleviating
suffering from these diseases. They support research
projects and sponsor a wide variety of community programs
in treatment, service, education, and prevention.
National Institute
of Diabetes and Digestive and Kidney Diseases (NIDDK):
NIDDK conducts and supports research on many of the
most serious diseases affecting public health. The Institute
supports much of the clinical research on the diseases
of internal medicine and related subspecialty fields
as well as many basic science disciplines.
National Institute
of Health: The NIH mission is to uncover new
knowledge that will lead to better health for everyone.
NIH works toward that mission by: conducting research
in its own laboratories; supporting the research of
non-Federal scientists in universities, medical schools,
hospitals, and research institutions throughout the
country and abroad; helping in the training of research
investigators; and fostering communication of biomedical
information.
National Institute
of Mental Health: The mission of the National
Institute of Mental Health (NIMH) is to diminish the
burden of mental illness through research. This public
health mandate demands that we harness powerful scientific
tools to achieve better understanding, treatment and,
eventually prevention of mental illness.
National Lymphadema
Network: The National Lymphedema Network (NLN)
is an internationally recognized non-profit organization
founded in 1988 by Saskia R.J. Thiadens, R.N. to provide
education and guidance to Lymphedema patients, health
care professionals and the general public by disseminating
information on the prevention and management of primary
and secondary Lymphedema. The NLN is supported by tax-deductible
donations and is a driving force behind the movement
in the U.S. to standardize quality treatment for Lymphedema
patients nationwide. In addition, the NLN supports research
into the causes and possible alternative treatments
for this often incapacitating, long-neglected condition.
National Organization
for Rare Disorders: NORD is the only organization
of its kind--a unique federation of more than 140 not-for-profit
voluntary health organizations serving people with rare
disorders and disabilities. Thousands of affected individuals
and their families--as well as support groups, health
care and human service professionals, and advocates
for people with rare disorders and disabilities--rely
on NORD's assistance and leadership. NORD is a charity
and continues its mission through the kindness and generosity
of its our donors.
National Parkinson
Foundation: NPF has a fourfold mission: (1)
to find the cause and cure of Parkinsons disease
and other allied neurological disorders through research;
(2) to provide diagnostic and therapeutic services;
(3) to improve the quality of life of patients and caregivers,
and (4) to educate people about Parkinsons disease.
National Stroke
Association: NSA is the only national nonprofit
organization dedication all its resources to stroke,
including prevention, research, treatment and support
for stroke survivors and caregivers.
Pleural
Mesothelioma Center: Part of our mission at
PleuralMesothelioma.com is to provide current, reliable
data on all topics relating to pleural mesothelioma
cancer. We are dedicated to compiling the latest and
most up-to-date information on pleural mesothelioma
and offer a number of resources to those coping with
the pulmonary cancer.
Sjogrens
Syndrome Foundation: The Sjogren's Syndrome
Foundation, founded in 1983, provides patients practical
information and coping strategies that minimize the
effects of Sjogren's syndrome. In addition, the Foundation
is the clearinghouse for medical information and is
the recognized national advocate for Sjogren's syndrome.
Spina Bifida Association
of America: The Mission of the Spina Bifida
Association of America is to promote the prevention
of spina bifida and to enhance the lives of all affected.
The Association was founded in 1973 to address the specific
needs of the spina bifida community and serves as the
national representative of over 70 chapters. SBAA's
efforts benefit thousands of infants, children, adults,
parents and professionals each year.
The
Asbestos Cancer and Mesothelioma Support Center
Mesothelioma is a cancer that remains virtually unknown
despite its seriousness. For 10 years The Asbestos Cancer
and Mesothelioma Support Center has concentrated on
the knowledge of, and the issues stemming from asbestos
exposure. They provide patients, care givers, and even
potential patients with every treatment option possible
to help fight this terrible disease.
United
Cerebral Palsy Association: For 50 years, United
Cerebral Palsy (UCP) has been committed to change and
progress for persons with disabilities. The national
organization and its nationwide network of 150 affiliate
partners strive to ensure the inclusion of persons with
disabilities in every facet of society - from the web
to the workplace, from the classroom to the community.
As the second largest health charity in America, United
Cerebral Palsy's mission is to advance the independence,
productivity and full citizenship of people with cerebral
palsy and other disabilities, through our commitment
to the principles of independence, inclusion and self-determination.
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