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National
Health Organizations
American
Cancer Society:
A nationwide, community-based voluntary health organization dedicated
to eliminating cancer as a major health problem by preventing cancer,
saving lives and diminishing suffering through research, education,
advocacy, and service.
American
Heart Association: Committed
to reducing disability and death from cardiovascular diseases and
stroke. Their web site is large containing thousands of pages and
many links.
American
Liver Foundation: The
American Liver Foundation is the only national, voluntary non-profit
health agency dedicated to preventing, treating and curing hepatitis
and all liver diseases through research, education and support groups.
American Lung Association:
ALAs mission is to proven disease and promote lung health
with a nationwide priority on asthma. The American Lung Association
has been fighting lung disease for more than 90 years, providing
programs of education, community service, advocacy and research.
Growth
House: Guide to Grief and Bereavement provides this
award-winning portal as your international gateway to resources
for life-threatening illness and end of life care. Our primary mission
is to improve the quality of compassionate care for people who are
dying through public education and global professional collaboration.
GriefNet.org
is an Internet community of persons dealing with grief, death, and
major loss. We have almost 60 e-mail support groups and two web
sites. Our integrated approach to on-line grief support provides
help to people working through loss and grief issues of many kinds.
Our companion site, KIDSAID, provides a safe environment for kids
and their parents to find information and ask questions.
Epilepsy Foundation:
The Epilepsy Foundation (formerly the Epilepsy Foundation of America)®
is the national organization that works for people affected by seizures
through research, education, advocacy and service. As an organization
of volunteers, they committed to the prevention and cure of epilepsy
and a positive quality of life for everyone who lives with seizure
disorders. Their current strategic goals include broadening and
strengthening of research, providing individuals and families with
easy access to reliable information, and assuring access to appropriate
medical care for those affected by seizures.
Huntingtons Disease
Society of America: Texas Affiliate Site
The
Leukemia & Lymphoma Society:
A voluntary nonprofit health organization dedicated to curing
leukemia and its related cancers (lymphoma, multiple myeloma and
Hodgkins disease) and to improve the quality of life of patients
and their families.
Lupus
Foundation of America:
The mission of the Lupus Foundation of America is to: Improve the
quality of life of people with lupus, their family and friends through
detection of the disease alleviation of suffering, and eradication
of lupus through research.
National
Cancer Institute: Coordinates
a national research program on cancer cause and prevention, detection
and diagnosis, and treatment. Its mission also includes the dissemination
of information about cancer to patients, the public, and health
professionals.
National
Coalition for Cancer Survivorship:
NCCS mission is to improve the quality of life of people with
all types of cancer. NCCS offers information on employment and insurance
issues, provides referrals to sources of support and advocates on
behalf of cancer survivors before Congress and federal agencies.
National
Kidney Foundation: Dedicated
to the prevention of kidney and urinary tract diseases and alleviating
suffering from these diseases. They support research projects and
sponsor a wide variety of community programs in treatment, service,
education, and prevention.
National
Institute of Diabetes and Digestive and Kidney Diseases (NIDDK):
NIDDK conducts and supports research on many of the most serious
diseases affecting public health. The Institute supports much of
the clinical research on the diseases of internal medicine and related
subspecialty fields as well as many basic science disciplines.
National Institute of Health:
The NIH mission is to uncover new knowledge that will lead to better
health for everyone. NIH works toward that mission by: conducting
research in its own laboratories; supporting the research of non-Federal
scientists in universities, medical schools, hospitals, and research
institutions throughout the country and abroad; helping in the training
of research investigators; and fostering communication of biomedical
information.
National
Institute of Mental Health:
The mission of the National Institute of Mental Health (NIMH) is
to diminish the burden of mental illness through research. This
public health mandate demands that we harness powerful scientific
tools to achieve better understanding, treatment and, eventually
prevention of mental illness.
National
Lymphadema Network: The
National Lymphedema Network (NLN) is an internationally recognized
non-profit organization founded in 1988 by Saskia R.J. Thiadens,
R.N. to provide education and guidance to Lymphedema patients, health
care professionals and the general public by disseminating information
on the prevention and management of primary and secondary Lymphedema.
The NLN is supported by tax-deductible donations and is a driving
force behind the movement in the U.S. to standardize quality treatment
for Lymphedema patients nationwide. In addition, the NLN supports
research into the causes and possible alternative treatments for
this often incapacitating, long-neglected condition.
National
Organization for Rare Disorders:
NORD is the only organization of its kind--a unique federation of
more than 140 not-for-profit voluntary health organizations serving
people with rare disorders and disabilities. Thousands of affected
individuals and their families--as well as support groups, health
care and human service professionals, and advocates for people with
rare disorders and disabilities--rely on NORD's assistance and leadership.
NORD is a charity and continues its mission through the kindness
and generosity of its our donors.
National Parkinson Foundation:
NPF has a fourfold mission: (1) to find the cause and cure of Parkinsons
disease and other allied neurological disorders through research;
(2) to provide diagnostic and therapeutic services; (3) to improve
the quality of life of patients and caregivers, and (4) to educate
people about Parkinsons disease.
National Stroke Association:
NSA is the only national nonprofit organization dedication
all its resources to stroke, including prevention, research, treatment
and support for stroke survivors and caregivers.
Sjogrens Syndrome Foundation:
The Sjogren's Syndrome Foundation, founded in 1983, provides
patients practical information and coping strategies that minimize
the effects of Sjogren's syndrome. In addition, the Foundation is
the clearinghouse for medical information and is the recognized
national advocate for Sjogren's syndrome.
Spina Bifida
Association of America:
The Mission of the Spina Bifida Association of America is to promote
the prevention of spina bifida and to enhance the lives of all affected.
The Association was founded in 1973 to address the specific needs
of the spina bifida community and serves as the national representative
of over 70 chapters. SBAA's efforts benefit thousands of infants,
children, adults, parents and professionals each year.
United
Cerebral Palsy Association:
For 50 years, United Cerebral Palsy (UCP) has been committed to
change and progress for persons with disabilities. The national
organization and its nationwide network of 150 affiliate partners
strive to ensure the inclusion of persons with disabilities in every
facet of society - from the web to the workplace, from the classroom
to the community. As the second largest health charity in America,
United Cerebral Palsy's mission is to advance the independence,
productivity and full citizenship of people with cerebral palsy
and other disabilities, through our commitment to the principles
of independence, inclusion and self-determination.
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